Once again our little fighter is deciding to show everybody that she's in charge. Today was the first day that she didn't have to be sedated at all. She's had some trouble with IV's today. She had to have 4 because they stop working or she keeps trying to kick them out of her feet. Her foot and leg got really swollen from an IV that stopped working this morning so they moved it to her arm, which later swelled and she now has an IV in her head. Hopefully it'll last a little longer than the previous ones. Avery was also able to breast feed twice today. She was a champ and now throws a fit if they have to feed her through a tube. Just being able to spend time with her, hold her for a little while, and talk to her was the highlight of my day. She is starting to become more alert and tends to go cross-eyed more often than not. She's always making little faces that make us laugh and she loves to hear her daddy's voice more than anybody else's. Whenever he's around her oxygen shoots to 100% and she does everything she can to move her head so that she can see him. Once in awhile we're lucky to see her smile and she also has a tendency of flipping people off. The pediatric specialist is very positive and has been keeping a close eye on her. Because of her progress they are slowly going to try to start to wean her off of the Nitric tomorrow and hopefully that will completely get her off the oxygen as well. If that happens and she's able to be weaned off both 100% it'll be one less tube in our way and will be a step closer to taking our little peanut home. Being here has been a great experience. We've been able to talk to several other couples who have babies here in the NICU who are in our similar situation. Talking to them has helped us to realize that we're not alone and has also given us a positive outlook on our situation. We've also been able to give encouragement and support to those who are just starting out on the same journey we've been on this week and to offer them hope that things will be ok because we know what they're going through and how they feel. We are also so thankful for the nurses who have been taking care of our little Angel. She definitely has them all wrapped around her finger. We appreciate all of the love, support, and prayers that have been offered on behalf of our little family. Words can't really describe how greatful we are for all of your kind words and thoughts and want everyone to know that your sweet gestures don't go unnoticed.
All Our Love
The McCandless Family
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