Today has been a really good day. Every morning at 9:30 the pediatric specialists, nurses, and doctors all get together and have a meeting at each baby's bedside. Here the parents are invited to listen in as they talk about that individual baby, what procedures they will be having that day, how the baby has been doing the past 24 hours, and any changes that will be made to the care of that baby for the day. This morning I sat and listened to them as they talked about how Avery was improving. They decided to not have her sedated at all today,they moved her IV to her foot from her head because the one in her head was causing her eye to swell, they also decreased the amount of oxygen and nitric they had to give her which is fantastic, and then they decided to only take her blood gas levels once a day instead of every 3 hours. Her blood gases are measured through a tube that goes through her belly button and up into her heart. Because they are only going to measure these levels once a day they decided to have that line removed. After talking about removing the line they asked me if I had held her before. I told them that I'd never held her and they said that today was our lucky day and as soon as the line in her bellybutton was removed (which would be a day long process) we would be able to hold her. I immediately started bawling and had to call and tell Wyatt who was soo excited!
The nurse that Avery had today was sooo wonderful. Her name was Jessica and she definately made my day. She brought me a bag of bows today and said that she thought that I might want to make Avery pretty and pick one out for her hair. I also made the comment that her hair was still crunchy because she hasn't been able to have a bath since she was born. So Jessica got a small tub and filled it with warm water and then swaddled her up tight in a blanket and helped me wash her hair and comb it and then put the bow on. To her it may not have been a big deal to get a baby a bow and help a mom wash her baby's hair but it meant the world to me and made me feel a little more normal.
After Wyatt got off work he came to the hospital and we were both finally able to hold our little girl. It was amazing. Seeing Wyatt holding her melted my heart and made today a great day. I couldn't have asked for today to go any better. Every day is a blessing and it's amazing to see the small improvements that Avery is making. We're still praying that next week we'll be able to take her home but along the way we're learning to be grateful for all of the small things and enjoying every minute.
Love
The McCandless Family
Friday, July 27, 2012
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